Hi everyone, I was wondering if there is anyone out there that has or knows someone that has Pulmonary Hypertension due to CREST Scleroderma? My Mom has just been diagnosed with it, and she is currently on Revatio (20mg 3X s a day), and she said that she doesn t really feel any different, she has been on it for about 6 months. Is there any other medicines out there that other people have tried and have they worked for you? Please let me know by replying back to the message, and is there any forums or chatgroups that anyone might know about to talk with people that have this disease? Thanks everyone.
okay well i know of one forum that is extremely helpful... www.roadback.org click on the community tab and then go to bulletin board. the website has to do with ap treatment and people recovering from diseases like ra and scleroderma through this treatment. i can atest to that(i have systemic scleroderma and have done very well on ap) poke around a bit and see if it might be something your mom would consider.
try here
No comments:
Post a Comment