Two years ago, I started having HORRIBLE headaches. I had one so bad that my vision went completely black for about 30 seconds and then came back in. I went to my doctor, and my blood pressure was 180/100. Until this point, it had always been about 120/70. I have a history of cholesteatomas in my ears, so they immediately sent me for an MRI, thinking I might have had a brain infection. The MRI showed some brain scarring that is abnormal for my age. (I was 22 then.) Sent to a neurologist, who then ordered a Lumbar Puncture. A tumor was ruled out. They suspected Multiple Sclerosis, but couldn t find enough evidence to support it. I can t remember the exact wording, but they found some type of protein that was much higher than normal. I ll go find out and add it in an edit. They said that whatever it was wasn t a common find with MS, but more common in B Cell Brain Tumors or brain infection, though neither were discovered. Because my spinal pressure reading was a lot higher than it should have been, they diagnosed me as having Intercranial hypertension (also known as pseudotumor cerebi.) My neurologist was convinced still that it was MS, and wanted to start me on injections - but I didn t think enough evidence supported it. They put me on a brain diuretic to relieve the spinal fluid pressure in my brain. The horrible daily headaches went away. My blood pressure remained elevated - ranging each day between 150 - 190 for my top number, but rarely going below that. Several medication attempts wouldn t lower my BP, and they just assumed (since I m overweight), that I d developed hypertension. Though my headaches became better, I still suffered with migraines on a weekly basis. They put me on pain medicine for relief as I didn t get any help from things like imitrix. Over the last year, my headaches have greatly slowed down. I ve been off the brain diuretic for awhile, because of side effects, and haven t redeveloped the pseudotumor symptoms. And I notice now that my blood pressure has returned to normal without medication. It s staying around 110-120/60-70 ... and has for about 3 months. So though my neurologist still thinks I should be labeled with quot;hypertensionquot;, I believe the BP was related to an undiscovered neurological disorder. I also think the intercranial hypertension was a symptom of something rather than the problem itself, as other neurological problems existed after that was corrected. Does anyone have a clue what this may sound like? I know this is a lot of information... but I m curious. Whatever it was, it went away on its own after 2 years. If I had MS, it would worsen, not disappear. And other than a questionable LP (well, 2) that didn t quite match with the diagnosis and some dymelianation in the brain, nothing else relates back to the possible multiple sclerosis diagnosis.
Could it have been some kind of virus that ran its course and that your body in time became immune to? I don t know why, but the word Lupus popped into my mind. Yours was certainly a unique experience, and most frustrating and perplexing. I m glad that you have made it through that horrible time - hope it never comes back in any way!
try and find information on quot;ADEMquot; sound like this! Report Abuse
I dont think anything is wrong with your brain. What you have typed in your question takes a reasonable IQ, and also having the want to find answers is a healthy sign. I do suggest though, YOU have to find out whats wrong and seek a remedy. No individual doctor, or neurologist can sort this out. The reason is that those specialists are so narrow in their field of expertise, and so ignorrant in seeking help from other professions, that failure is the only result that is possible in your case. I want you to think back to a year before these headaches first occurred. Was you in any sort of accident, or minor head bump like bumping when raising up, or walking into something high, that could have kinked your neck. A neck injury, although no big deal at the time, can cause headaches, mood swings and even migraine headaches. These symptons may take a year to 3 years to develope. So think back, Or you could have bad neck alignment from bad posture. Laying with head kinked to the side watching TV is a neck kinker. I suggest to go to a Chiropractor, a reputable one that uses Xrays. I suggest to enquire among family and friends for a recommendation. I suggest one around 30 years old that has keen medical knowledge is what you want. Take this in mind if you think your neck is traumastised. 1. use a chiro regularly for 6 months to get the bones align, budget 10 visits then a few per year. 2. use a remedial massage therapist to loosen the muscles that hold the bones in place, so that they dont pull on the bones (applys to all of your spine) Budget 3 visits 3. After 6 months and at the end of all the activity from the chiro, and massagist, see a doctor for a 3 months antiflammatory course to settle down any inflamed soft tissue, to strenghten the areas of concern. When seeing these people you need to tell them your story, I wish you luck, but remember, YOU have to fix it. No individual profession will take control of it and tell you to see the other, you have to do that.
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