Anyone out there have Benign Intracranial Hypertension? -

dont just google it and pretend. just wanna know how ppl cope really, it aint easy and almost no one knows wat it is.

I had it and I still may have it. My condition is called Pseudo-tumor cerebre (False Brain tumor). Pretty much I am either producing too much CSF or the ventricles in the brain aren t absorbing fast enough. This puts pressure on the brain and optic nerves. I started having horrible headaches all the time. When I would sneeze or cough, it would feel like my brain was going to shoot out the front of my skull, lots of pressure. Then I started getting weird zig zag line is my vision and when i would go from bending over or lying down to standing up, I would loose all sight for at least 1 min. This is also accompanied with a whooshing sound in my right ear. (Its the sound of blood pumping though my carotid) cause my extra pressure on the brains structure. I had 8 spinal taps to drain the excess fluid and relieve pressure and was also on a heavy duty diuretic. I went into quot;remissionquot; but I have reason to believe it has returned.